Research project - Informal Caregiving in Non-Malignant Respiratory Disease at End of Life

Understanding caregivers’ experiences and identifying how they can be better supported.

This study will look at the informal care provided for Non-Malignant Respiratory Disease (NMRD) to someone at the end of their life.

Primary qualitative data will be collected from bereaved caregivers to better understand their experiences.

This 6-month study forms part of a wider programme of work that seeks to answer how caregivers providing care for NMRD at end of life can be better supported.

Project Lead: Kathy Rogers, Senior Nurse Lecturer, University of the West of England (UWE) Bristol.

Local Lead: Ali Beattie, Strategy and Development Administrator, St Oswald’s Hospice

The aim is to explore the experiences and roles of informal caregivers for people with Non-Malignant Respiratory Disease (NMRD) at end of life, and to identify what helps and hinders them when delivering this care.

Qualitative methods only.