Research project - C-POS

Children’s Palliative Care Outcome Scale Validation Study

There are estimated to be more than 86,000 children and families living in the UK with a life-limiting or life-threatening condition. This number is rising due to advances in medical care.

Many of these children and families would benefit from palliative care services due to complex symptoms, social and psychological needs, and the unpredictability of their condition.

In previous phases of this research, children, families, healthcare providers, commissioners, and other stakeholders were asked what matters most to them when caring for children with a life-limiting/life-threatening illness.

A questionnaire was developed to determine a set of psychometric measures known as the Children’s Palliative Care Outcome Scale (C-POS).

In the final stage of the research project, children, families, and staff were asked to complete the C-POS twice to assess its reliability and effectiveness.