This #ChildrensHospiceWeek is all about moments that matter and allows us to celebrate how we help children, young adults and their families to make precious memories.
Ellen Law, age 18 from Newcastle, is one young person that has benefitted from the services we provide.
Ellen has a rare condition that affects her muscles called Spinal Muscular Atrophy Type 2. Despite living with the genetic condition, Ellen hopes to make more special moments and memories at university this summer. Ellen said:
Because of my condition, I am in an electric wheelchair all day, and I need help with things like administering medication. My Mam helps me a lot so when I’m at St Oswald’s it means she can have a rest from looking after and supporting me.
When I first found out about St Oswald’s I was nervous about attending as I hadn’t really stayed anywhere without my Mam before. But on arrival the environment was very warm and friendly.
It benefits me coming to the hospice as it gives me independence away from my family and a different kind of support. I go to their monthly young adult social group which means I can do thingsI probably wouldn’t be able to without St Oswald’s. This month we went to an ice bar in Newcastle which I really enjoyed.
Talking about her plans for the future, Ellen said:
At the minute I am completing my A Levels and I have a conditional offer for university this summer. I’m hoping to study Maths at Newcastle University and I have plans to move from home in to student accommodation.